If you would like your centre to participate in any of the agreements below, please download, complete and forward to the EBMT the relevant form. All must be signed by the Principal Investigator (PI) of the centre as s/he appears in the membership list. We will check the name of the PI against the EBMT membership list and reject requests that do not comply with this requirement.
Centres who wish to do so, can give permission to the Eurocord Registry to see data of patients that have received cord blood HSCT without having to send them the data in a separate format.
Click on the permission request form for the EBMT to share patient outcome data with the Eurocord Registry to see further information and access the consent form.
Stem Cell Transplant for Immuno Deficiencies in Europe (SCETIDE) CIC 7427
Centres who wish to do so, can give permission to the SCETIDE to see data of patients that have undergone an HSCT procedure for primary immune deficiencies or FELH without having to send them the data in a separate format.
Click on the permission request form for the EBMT to share patient outcome data with the SCETIDE to see further information and access the consent form.
CIBMTR
NOTE: The transfer of data is currently interrupted as the CIBMTR is implementing new procedures to their information system.
For centres that submit data to the CIBMTR, the EBMT has an agreement with the CIBMTR to transfer MED-A and MED-A follow up so that the centre does not have to send them the data in a separate format. (MED-A data is equivalent to the CIBMTR’s TED data).
Click on Permission to share Data with CIBMTR if you would like to request that the EBMT transfer these data to the CIBMTR. Forms must be signed by the Principal Investigator (PI) of the centre. We will check the name of the PI against the EBMT membership list.
Please note that the EBMT cannot act on this permission until you have contractual clearance with the CIBMTR. It is the centre’s responsibility to ensure that the patient consent to data transfer covers data being sent outside of the European Union or European Economic Area.
Please contact the CIBMTR directly if you require further information.